Showing posts with label HLHS. Show all posts
Showing posts with label HLHS. Show all posts

Thursday, August 27, 2009

Worthy Cause

Our friends Matt and Jamie Wallace, who lost their daughter Nevaeh back in April, have come up with a beautiful way to honor her and keep her memory alive.

Playroom of Hope is a room that is in the new building at Children's Hospital. It is currently being used as offices but as soon as the money is raised, it will be turned into a room for the kids in the hospital and their siblings to go and hang out. Please consider giving to this most worthy cause.

Remember them in your prayers as well. They do have a CaringBridge Website that Matt continues to update to help in the healing process.

Thank you,
Jodi

Saturday, February 14, 2009

Happy Valentine's Day, Happy Birthday!

I would like to wish a few people Happy Birthday today.

My mom
Nevaeh
My cousin

It is a super special day for Nevaeh as it is her first birthday. It is amazing to see this little girl grow and change all the time. She was born withHLHS but you would never know it. You can keep up with her progress here. We hope you have a great time at your party and we wish we could be there!

Emma is doing very well. There was no obstruction in her bowels, which is an answer to prayers. She was just constipated, but not after the study, it cleaned her out quite well. All over her clothes and my pants. Oh well, not the first time and it won't be the last!

I ended up having shingles. I went to the doctor on Monday for the lump in my neck and he did some blood work to rule out anything with the lymph nodes. He figured it may be related to my neurofibromatosis. Tuesday I got a rash on my chin so I just put some cream on it, but Thursday morning it was all blistered so I went back to the doctor and he said it was shingles. I got some medicine and the rash is better now, but I still have some pain, though that is getting better too.

Have a great day!
God Bless,
Jodi