He also likes to "gack-yoom", aka vacuum. And he likes to use various items to vacuum.
As you can see, he can also multi-task. Gotta start them young!
Thursday, August 27, 2009
The Next Ancil Adams? Or Mr. Mom?
Sam got a hold of my mother-in-law's camera. At first he was just pretending to take pictures, complete with the clicking sounds. Then he figured out how to turn it on, pop the flash and then he snapped a few pictures. He also got a hold of our point and shoot camera and took a few self portraits.
He also likes to "gack-yoom", aka vacuum. And he likes to use various items to vacuum.
As you can see, he can also multi-task. Gotta start them young!
He also likes to "gack-yoom", aka vacuum. And he likes to use various items to vacuum.
As you can see, he can also multi-task. Gotta start them young!
Therapy
Emma has been in therapy for 1 year. It is amazing the progress she has made. We went from her not being able to do anything, to her walking in one year, an answer to prayers! There has been times when she has been a pistol, not wanting to do what we wanted her. She is totally a girl who will do things on her own time. We would try anything to get her to roll over, then one day, she just starts rolling. Same thing with crawling and walking. You should see her tear it up now. I would say she is walking 90% of the time and she gets so excited when we cheer her on.
Her therapist brought us some biker shorts that should help strengthen her hips as well. We are so thankful for the progress she has made so far. The therapist says we can go to every other week or once a month now for her sessions because we just really need to work on refining her walking skills, then work on jumping and getting her on her tip toes among a few other things.
God is so good!
Her therapist brought us some biker shorts that should help strengthen her hips as well. We are so thankful for the progress she has made so far. The therapist says we can go to every other week or once a month now for her sessions because we just really need to work on refining her walking skills, then work on jumping and getting her on her tip toes among a few other things.
God is so good!
Wednesday, July 22, 2009
All Growed Up
BEFORE.....
AFTER.....
He can be such a little ham. I love his curls but it was getting to long and it gets so snarly in the back. Every time I would try to comb it, he would say "Sorry, sorry." as I was trying to get thru the curly mess. I think his face looks thinner too. He is growing way to fast!
And this little one.....
Don't let her fool you.....
I'm just saying.
Have a great day!
Jodi
AFTER.....
He can be such a little ham. I love his curls but it was getting to long and it gets so snarly in the back. Every time I would try to comb it, he would say "Sorry, sorry." as I was trying to get thru the curly mess. I think his face looks thinner too. He is growing way to fast!
And this little one.....
Don't let her fool you.....
I'm just saying.
Have a great day!
Jodi
Surgery Date
The date for my surgery is August 11th at 7:30am. I have to be there 2 hours before that so we will likely spend the night near the hospital so we don't have to leave here at 4am. I am a little nervous about the surgery but I know everything is in God's hands and I just need to give my fears to Him.
I have some appointments next week to meet with the high risk anaesthesiologist and to meet with the surgeon's nurse pracitioner to go over everything with the surgery, recovery time, etc.
They will try to do the surgery laproscopically(sp?) but if they can't, then they will have to cut me open. I believe the surgeon said depending on how they do the surgery, I will be in the hospital 2-5 days. Of course recovery time will depend on how they end up doing the surgery as well.
The doctors are still adjusting my medications to make sure things will go smoothly as possible during surgery. I have not noticed any side effects of them changing my meds. My pulse has been higher than normal but other than that, I have been feeling pretty good.
May God Bless you today,
Jodi
I have some appointments next week to meet with the high risk anaesthesiologist and to meet with the surgeon's nurse pracitioner to go over everything with the surgery, recovery time, etc.
They will try to do the surgery laproscopically(sp?) but if they can't, then they will have to cut me open. I believe the surgeon said depending on how they do the surgery, I will be in the hospital 2-5 days. Of course recovery time will depend on how they end up doing the surgery as well.
The doctors are still adjusting my medications to make sure things will go smoothly as possible during surgery. I have not noticed any side effects of them changing my meds. My pulse has been higher than normal but other than that, I have been feeling pretty good.
May God Bless you today,
Jodi
Monday, July 6, 2009
Praise reports and Prayer Requests
This will be short tonight with another update coming hopefully tomorrow.
First, our baby girl has taken her first steps unassisted. For any parent, it is super exciting, but given everything we have been through with Emma, it makes it that much more special and exciting. She took 3 steps toward my mother-in-law on Friday night as I lay on the couch sick from a kidney infection. I was supposed to work, but had called in because I was so sick to my stomach and had a fever that would range from 100 to 102.5. I am OVERJOYED that I got to see her take those steps.
She took a few more that night, mostly just 1 step here and there. She did a little bit more on Saturday between Dennis and I. Now I don't think it will be long at all.
For me, as I mentioned in my last post, I was seeing a Endocrinologist about my Pheochromocytoma. I had a CT scan done in June and it showed a 6+cm tumor on my right adrenal gland. I have met with the surgeon and the plan is to remove it some time in August after our vacation. They are playing a bit with my medication, prepping me for the surgery so hopefully my blood pressure won't go all crazy during surgery.
Thank you for your thoughts and prayers, we truly treasure them.
God Bless
Jodi
First, our baby girl has taken her first steps unassisted. For any parent, it is super exciting, but given everything we have been through with Emma, it makes it that much more special and exciting. She took 3 steps toward my mother-in-law on Friday night as I lay on the couch sick from a kidney infection. I was supposed to work, but had called in because I was so sick to my stomach and had a fever that would range from 100 to 102.5. I am OVERJOYED that I got to see her take those steps.
She took a few more that night, mostly just 1 step here and there. She did a little bit more on Saturday between Dennis and I. Now I don't think it will be long at all.
For me, as I mentioned in my last post, I was seeing a Endocrinologist about my Pheochromocytoma. I had a CT scan done in June and it showed a 6+cm tumor on my right adrenal gland. I have met with the surgeon and the plan is to remove it some time in August after our vacation. They are playing a bit with my medication, prepping me for the surgery so hopefully my blood pressure won't go all crazy during surgery.
Thank you for your thoughts and prayers, we truly treasure them.
God Bless
Jodi
Tuesday, June 2, 2009
Motivation
Or lack of motivation is more like it.
I really have not had any interest in blogging lately and I have not even been blogging that long.
So many things going on. I had an appointment yesterday with an Endocrinologist. It was more of a consult actually. I had some tests done earlier in May to hopefully figure out why my blood pressure was spiking at times when I was just sitting at the computer or playing with the kids.
They determined that I may have Pheochromocytoma. Great, I thought. Let's add another disease to my list. It is very rare, like only 800 people or so are diagnosed with it each year. Basically it is a tumor that is growing on one(or both) of the adrenal glands and it causing pressure on the veins and making the blood pressure rise.
The tumors can be related to the Neurofibromatosis , which I was diagnosed with back in 2001. So the geneticist that Sam and Emma saw was right on when she suggested that there may be a tumor causing my high blood pressure.
Good news is that it is usually treated by surgery and once the tumor is gone, the blood pressure will likely return to normal, or at least I should be able to get off most of my medications.
I have a CT scan scheduled for June 15th to determine how things look and I will see the Endocrinologist again on June 29th to see where we go from there.
Emma is close to walking. She has been pulling up on furniture or the walls for a couple of weeks now. She can also get up on the couch by herself for the most part and has just recently how to get down. She can also get down off our bed by herself, though she usually will end up on her butt. At least she does it gracefully, which she did not get from me!
Sam is talking a little bit more, still not as much as I think he should be, but he still is learning and can do most of the alphabet flash cards we have with the pictures. We will see what the doctor says at this next appointment.
Not much else new to report for now. Please remember to keep
Nevaeh's family in your prayers. They are really struggling with the loss of their beautiful girl. I know of too many people who have lost babies in the last few years and it does not seem fair. I know God is with them, but it does not make it any easier to understand.
I will leave you with a few pictures of my sweet ones.
Good Night and God Bless
J
I really have not had any interest in blogging lately and I have not even been blogging that long.
So many things going on. I had an appointment yesterday with an Endocrinologist. It was more of a consult actually. I had some tests done earlier in May to hopefully figure out why my blood pressure was spiking at times when I was just sitting at the computer or playing with the kids.
They determined that I may have Pheochromocytoma. Great, I thought. Let's add another disease to my list. It is very rare, like only 800 people or so are diagnosed with it each year. Basically it is a tumor that is growing on one(or both) of the adrenal glands and it causing pressure on the veins and making the blood pressure rise.
The tumors can be related to the Neurofibromatosis , which I was diagnosed with back in 2001. So the geneticist that Sam and Emma saw was right on when she suggested that there may be a tumor causing my high blood pressure.
Good news is that it is usually treated by surgery and once the tumor is gone, the blood pressure will likely return to normal, or at least I should be able to get off most of my medications.
I have a CT scan scheduled for June 15th to determine how things look and I will see the Endocrinologist again on June 29th to see where we go from there.
Emma is close to walking. She has been pulling up on furniture or the walls for a couple of weeks now. She can also get up on the couch by herself for the most part and has just recently how to get down. She can also get down off our bed by herself, though she usually will end up on her butt. At least she does it gracefully, which she did not get from me!
Sam is talking a little bit more, still not as much as I think he should be, but he still is learning and can do most of the alphabet flash cards we have with the pictures. We will see what the doctor says at this next appointment.
Not much else new to report for now. Please remember to keep
Nevaeh's family in your prayers. They are really struggling with the loss of their beautiful girl. I know of too many people who have lost babies in the last few years and it does not seem fair. I know God is with them, but it does not make it any easier to understand.
I will leave you with a few pictures of my sweet ones.
Good Night and God Bless
J
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