This will be short tonight with another update coming hopefully tomorrow.
First, our baby girl has taken her first steps unassisted. For any parent, it is super exciting, but given everything we have been through with Emma, it makes it that much more special and exciting. She took 3 steps toward my mother-in-law on Friday night as I lay on the couch sick from a kidney infection. I was supposed to work, but had called in because I was so sick to my stomach and had a fever that would range from 100 to 102.5. I am OVERJOYED that I got to see her take those steps.
She took a few more that night, mostly just 1 step here and there. She did a little bit more on Saturday between Dennis and I. Now I don't think it will be long at all.
For me, as I mentioned in my last post, I was seeing a Endocrinologist about my Pheochromocytoma. I had a CT scan done in June and it showed a 6+cm tumor on my right adrenal gland. I have met with the surgeon and the plan is to remove it some time in August after our vacation. They are playing a bit with my medication, prepping me for the surgery so hopefully my blood pressure won't go all crazy during surgery.
Thank you for your thoughts and prayers, we truly treasure them.
God Bless
Jodi
Showing posts with label Pheochromocytoma. Show all posts
Showing posts with label Pheochromocytoma. Show all posts
Monday, July 6, 2009
Tuesday, June 2, 2009
Motivation
Or lack of motivation is more like it.
I really have not had any interest in blogging lately and I have not even been blogging that long.
So many things going on. I had an appointment yesterday with an Endocrinologist. It was more of a consult actually. I had some tests done earlier in May to hopefully figure out why my blood pressure was spiking at times when I was just sitting at the computer or playing with the kids.
They determined that I may have Pheochromocytoma. Great, I thought. Let's add another disease to my list. It is very rare, like only 800 people or so are diagnosed with it each year. Basically it is a tumor that is growing on one(or both) of the adrenal glands and it causing pressure on the veins and making the blood pressure rise.
The tumors can be related to the Neurofibromatosis , which I was diagnosed with back in 2001. So the geneticist that Sam and Emma saw was right on when she suggested that there may be a tumor causing my high blood pressure.
Good news is that it is usually treated by surgery and once the tumor is gone, the blood pressure will likely return to normal, or at least I should be able to get off most of my medications.
I have a CT scan scheduled for June 15th to determine how things look and I will see the Endocrinologist again on June 29th to see where we go from there.
Emma is close to walking. She has been pulling up on furniture or the walls for a couple of weeks now. She can also get up on the couch by herself for the most part and has just recently how to get down. She can also get down off our bed by herself, though she usually will end up on her butt. At least she does it gracefully, which she did not get from me!
Sam is talking a little bit more, still not as much as I think he should be, but he still is learning and can do most of the alphabet flash cards we have with the pictures. We will see what the doctor says at this next appointment.
Not much else new to report for now. Please remember to keep
Nevaeh's family in your prayers. They are really struggling with the loss of their beautiful girl. I know of too many people who have lost babies in the last few years and it does not seem fair. I know God is with them, but it does not make it any easier to understand.
I will leave you with a few pictures of my sweet ones.
Good Night and God Bless
J
I really have not had any interest in blogging lately and I have not even been blogging that long.
So many things going on. I had an appointment yesterday with an Endocrinologist. It was more of a consult actually. I had some tests done earlier in May to hopefully figure out why my blood pressure was spiking at times when I was just sitting at the computer or playing with the kids.
They determined that I may have Pheochromocytoma. Great, I thought. Let's add another disease to my list. It is very rare, like only 800 people or so are diagnosed with it each year. Basically it is a tumor that is growing on one(or both) of the adrenal glands and it causing pressure on the veins and making the blood pressure rise.
The tumors can be related to the Neurofibromatosis , which I was diagnosed with back in 2001. So the geneticist that Sam and Emma saw was right on when she suggested that there may be a tumor causing my high blood pressure.
Good news is that it is usually treated by surgery and once the tumor is gone, the blood pressure will likely return to normal, or at least I should be able to get off most of my medications.
I have a CT scan scheduled for June 15th to determine how things look and I will see the Endocrinologist again on June 29th to see where we go from there.
Emma is close to walking. She has been pulling up on furniture or the walls for a couple of weeks now. She can also get up on the couch by herself for the most part and has just recently how to get down. She can also get down off our bed by herself, though she usually will end up on her butt. At least she does it gracefully, which she did not get from me!
Sam is talking a little bit more, still not as much as I think he should be, but he still is learning and can do most of the alphabet flash cards we have with the pictures. We will see what the doctor says at this next appointment.
Not much else new to report for now. Please remember to keep
Nevaeh's family in your prayers. They are really struggling with the loss of their beautiful girl. I know of too many people who have lost babies in the last few years and it does not seem fair. I know God is with them, but it does not make it any easier to understand.
I will leave you with a few pictures of my sweet ones.
Good Night and God Bless
J
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